Etiquettes of Data Sharing in Healthcare and Healthcare Research
نویسندگان
چکیده
Our studies suggest that data is not an unencumbered commodity but that it comes entangled with obligations: sharing data reflects a nexus of rights, obligations and expectations associated with collegiality, data ownership, confidentiality, IPR, competitive advantage, ethics, and other organisational, personal and professional concerns. These concerns do not simply dissolve in the face of the e-Science vision. Based upon our observations of healthcare professionals’ data sharing practices, we argue that the success of technologies like the Grid will depend heavily on finding practical ways by which interests, rights and obligations incumbent on collaborating organisations and persons can be recognised and embedded within these technologies.
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